Comments on: I’m Eyeballin’ You.

By: Trance

Trance — Tue, 16 Mar 2010 18:11:07 +0000

I was on the brand name, I THINK. Not sure, when I see my neurologist next month we are going to discuss this whole thing. I’m not sure how much the generic is, but I am going to go look it up now. What I’m wondering about is whether I can take it with my current seizure med (Topamax.)

By: S_Horowitz

S_Horowitz — Tue, 16 Mar 2010 13:03:30 +0000

The generic version is available, according to Wikipedia. Were you definitely on the brand medication? Would the generic lamotrigine work to give you sight? Would it be cheap enough to buy for that effect alone? (Would your doctors prescribe it for your sight even if it wasn’t curbing the seizures?)

Damn, I wish I could give you answers. Reading all the weird side effects of Lamictal was fun. I agree with your doctors, some kind of voodoo occurred in your eyes. But man, wouldn’t it be great if it could happen again!?

By: Trance

Trance — Sat, 13 Mar 2010 22:07:30 +0000

It didn’t, unfortunately. Therein lies the rub.

By: Nightowl

Nightowl — Sat, 13 Mar 2010 02:07:11 +0000

Ok, I’m going to let you on a little (known to some) secret about the pharmacology world. Check the Patent on Lamictal. Because as soon as it ends, the price will drop. And I mean drop. And Then you can get the generic brand. My husbands thyroid med went from 100+ dollars to $8.

I think it sucks that you had to be taken off of the drug and want to impart something that might help you. Good Luck.

Did it also work for your seizures? Were you having less of them?

By: trancejen

trancejen — Thu, 11 Mar 2010 20:31:18 +0000

I am going to see what i can do about getting back on the drug. Hopefully it wasn’t just a fluke.

By: Mo

Mo — Thu, 11 Mar 2010 20:08:22 +0000

I’m sorry about you vision, Jen. I know that you were looking forward to seeing more long term =(, but you are right, it was awesome while it lasted. I am so curious about the fluke and what made it happen…I suppose there are worst medical side effects to have =)

By: trancejen

trancejen — Thu, 11 Mar 2010 18:39:08 +0000

No shit! I don’t know if I could work again yet because still, seizures, but I could at least get cracking on something at home, you know!

By: Laughing Muse

Laughing Muse — Thu, 11 Mar 2010 18:27:42 +0000

If it caused improvement enough that you could work again, they’d probably get to work on that Pretty Damn Fast (because someone who’s working, and paying taxes, and buying stuff, is Good For The Economy. That’s the logic-stick to use to gently tap their forebrain…)

By: trancejen

trancejen — Thu, 11 Mar 2010 17:12:52 +0000

I’m looking into that. The med is pretty expensive and the one I’m on now is pretty cheap, so I’m not hopeful (and Drs. are not convinced the situation would even happen again), but who knows?

By: Laughing Muse

Laughing Muse — Thu, 11 Mar 2010 17:07:24 +0000

Well, shee-ah-ey-ut. (Obnoxious enough that it requires a four-syllable swear. All Southern-style.) It’s not Flowers for Algernon, but it’s pretty sucky.

Have you written to your congresscritter telling them about the improvements and the insurance/medication situation and soforth? Their office may be able to do something.